Wednesday, 14 August 2013

Check-up and scan results

A good visit to the hospital, despite the road closures making the journey there somewhat fraught, and the 75 min delay in the clinic.  The consultant was happy with my scan results (apparently some activity was shown in the mouth, but that was just continued signs of healing).  An no more scans!  Unless I feel something new, or they spot anything at my 6 weekly checks, I'm off the hook.

And the PEG is out, which is a great relief.

Tuesday, 13 August 2013

Recovery Week 18

The new ulcers healed, more or less, eventually.  My mouth is now not too bad again, and I'm eating mostly normally.  I still can't open my mouth wide enough to eat a burger (other than a very thin one), in fact it seems like I might never be able to as my mouth doesn't seem to be able to open any wider, despite doing the exercises I was given.

Had a good weekend away, though a day out wears me out by mid afternoon which I had not expected.  Tomorrow is check-up day when they will confirm the results of my first post-treatment scan (which at least can't be very bad, otherwise they would have called be in sooner).  I was also promised my PEG out tomorrow, which I plan on holding them to - I haven't used it for over 4 weeks, so it is just an annoyance.

I am off work this week, hopefully celebrating the PEG tube removal and a clear scan.  Slightly nervous, but cautiously optimistic all the same.


Saturday, 27 July 2013

Recovery week 15 - not quite as good a week

That'll teach me to be complacent!  After a couple of weeks of constant improvement, this last week has set me back somewhat.  Last weekend a huge ulcer developed at the back of my mouth, on the 'treatment side'. Ulcers are obviously painful, but ones that are huge and in a place where all food and drink passes on the way in are particularly no fun.

The ulcer seems to be slowly healing now and this morning is the first time in a week that I have had breakfast without any significant pain.  My gums on the same side also became incredible sensitive by the middle of the week, I think because of another couple of smaller ulcers on the roof of my mouth, by the gum line - hard to tell, as it's not easy to see.  Hence brushing my teeth can leave me with my eyes watering!

I've gone back to using the homemade bicarb/salt mouthwash, which seems to have helped the healing along.  Perhaps I shouldn't have stopped using it in the first place!

Hopefully the relative lack of pain when brushing and eating this morning is a sign that things are improving again.

2.5 weeks to go until the PEG comes out though, which I am really looking forward to.  So ulcers or not, I am still eating!  The PEG is now a constant annoyance, as it no longer needed and just gets in the way and provides a constant reminder of what has happened this year (not that I forget very often!).

Also, I had my PET scan last Friday, so it has now been a week and no call from the hospital, which I am hoping means they found nothing and won't be calling next week - fingers crossed.  Not sure what the nurse did with the cannula, the bruise on my arm is worse that I remember having before.


Wednesday, 17 July 2013

Recovery Week 14

After a lovely weekend away, where I ate pain-free and had some Guinness I am feeling a good proportion of normal.  Throat is dry still, not helped by the scorching heat we are experiencing here in the UK right now, but as long as I have a bottle of water I can eat most things and find myself almost forgetting I was ill (not often, mind).

So no more feeding pump, and I reckon I'll be fine to get the PEG removed mid-August when I go back to the hospital - I'm already getting annoyed with it, now I'm not using it, and it hasn't been a week yet!

PET scan Friday, fingers crossed that I won't then hear from the hospital prior to mid-August...

Saturday, 13 July 2013

End of week 13

At Centre Parcs! Bit tiring but good. I have had a couple of days of very little pain when eating, which is timely as this weekend is the start of not using the food pump. So far, so good.

Wednesday, 3 July 2013

Recovery Week 12

We're in the 12th week of recovery and all the news is pretty positive.  I had a check up today and the consultant is happy with my healing (even though it still has a little way to go - some means are still a bit of a trial) - he is scheduling a PET scan for sometime in the next few weeks to check that nothing has been left behind (or appeared in the meantime) but he was pretty clear that he would be very surprised if there was (with the usual caveat that anything is possible).  I'll then have one every 3 months for a little while, then less often, for the next 5 years.

The speech therapist has discharged me, and the nutritionist is scheduling my tube removal for the next appointment in 6 weeks time as they are confident I'll have been off the PEG for a few weeks by then, based on my progress.  They also gave me some gel for my mouth to try to keep it hydrated overnight, in the hope that I might be able to sleep past 5:30am, which is when I currently wake up parched.  Apparently some people swear by it and others don't find it helps at all, so I will try it and see.  Luckily I never used the spray they gave me, as they have just heard that it can be quite bad for teeth - I'll bin that one!

I had a PEG tube replacement yesterday, which was very quick and done at home, but still not entirely pleasant.  Last one, thankfully - I'll have half of the process when they take it out, of course.  Apparently they just pop it out, put a dressing on and send me home.  By the time I get home the hole will be more or less sealed.

And I treated myself to a cheeseburger, which I managed to eat (with the aid of a bottle of water).  And some chicken nuggets ;-)










Wednesday, 26 June 2013

Recovery Week 11

Some progress this week.  Whilst still sore, my throat is somewhat better to the point where I am able to eat mostly full meals.  Hence I have been cutting down on the feed, to the point where today I will have half of what I was having last week.  Mornings are hard work, as my throat is bone dry when I wake up, but by lunch time I'm able to eat more or less unhindered, though somewhat slowly.  I am hoping to be eating everything orally within the next couple of weeks, but will see how it goes.  Then a few weeks and I can have the tube out, which to me is 'back to normal' (more or less).

I'm working full time now, from home in the morning and into the office at lunch time.  This week will be my first going to the office every day.

And my taste buds seem to be recovering well now allowing me to taste most things properly - still a bit salty at times, and sweet is nowhere near as sweet as it used to be, but I'm rarely finding anything that I can't eat due to taste.  Even able to have a little Guinness now and then :)


Monday, 17 June 2013

Recovery Week 10

I have not been posting much recently as there has not been much to report.  Basically very slow progress, eating a little bit more every few days, but barely enough to mention.  I am now at the point where I have three small meals per day plus one whole bag of 'feed' but no supplements.  The next step is to increase the size of the meals and reduce the amount of feed I use, which I am building up to now.

I have actually been feeling more tired this last week or so, but at times it all becomes a blur such that it is hard to tell if I am better or worse!  My throat is getting very dry at night, which is waking me very early, so that might be contributing to the tiredness.

Today I had a breakthrough as I was able to eat a whole cheese sandwich, which was an improvement on much more moist foods (or occasional tiny bits of drier food) not to mention a psychological victory, spurring me on to go our for a walk for 25 mins at the end of the day, leaving me feel somewhat refreshed.

Another couple of weeks and I'm back at the hospital for a checkup, so I have to make sure I'm eating well and my weight is up.  The next big milestone is eating enough to sustain my weight, after which I'll be allowed to get the PEG removed, but I think I'm still a few weeks off (or more).

Sunday, 2 June 2013

End of week 7 of recovery

After the hassle of hospital last weekend, this week has been pretty good.  My burned tongue is a lot better, to the point where it isn't a barrier to eating.  My throat is sore and varies day to day, but I have managed to eat some meals, albeit too small to take me off the supplements and feed, but the quantity has been gradually increasing so I'm cautiously optimistic that we're on the right track.

I finished the antibiotics yesterday, and am now hoping that the improvements continue and I don't go backwards.  Overall my mouth and throat are drying up as they heal, which is as expected, though it does seem to leave me coughing a lot more (though not coughing much up, just coughing - I can feel how dry my throat is and I think that's the cause).

So yesterday I ate lunch of potatoes, carrots and a (very) little bit of sausage - the portion was probably smaller than Daniel's, but it's a start.  And then an inch square of lasagne and garlic bread (sans crusts) for dinner.

Having worked most of the week (mainly from home, but a few hours in the office!) I'm a little worn out, but not overly so.

I'm crossing my fingers that the general direction remains the same in the coming week.


Sunday, 26 May 2013

Back to hospital

Sadly a persistent high temperature landed me back at the hospital last night. After blood tests, etc. they decided to give me antibiotics and send us home. A huge relief not to be stuck there until after the bank holiday which is what would probably have happened.

We were home for 1:30am so very tired today. 

Thursday, 23 May 2013

Recovery Week 6

We had the 6 week checkup at the hospital yesterday.  The registrar confirmed that everything was as they expected at this stage and that it was still relatively early in the recovery process, so the sore tongue and throat were normal and would slowly get better.  The support team want me to eat a few mouthfuls of something soft every day to get back into the habit of eating and to encourage my taste buds and saliva glands to recover.

So, yesterday I managed three spoons of Ready Brek (tastes like salted cardboard) and this morning I had three spoons of crushed melon (tastes like petrol).  Yum!


Monday, 13 May 2013

Recovery, 4 weeks done

4 weeks later and I can now talk again, sometimes drink water, which is generally getting better though I do have bad moments. One problem is a burn on my tongue that keeps catching on my teeth. I suspect this will be the biggest issue with eating. Speaking of which, I still can't which is very frustrating. I was hoping to be eating by now :(

Today I felt pretty much ok, not overly tired and very able to get a few bits and pieces done. Hopefully not just a one off, which I have had a few of.

So, still slow progress but at least it is progress.

Thursday, 2 May 2013

Recovery week 3

Slow slow progress, but at last today I am able drink water with relative ease. I still don't have a huge amount of energy but am managing to start doing one or two things around the house now and then.

It is quite frustrating with such slow progress, but I am hoping I can still drink water tomorrow and if I can I will take it as an indication that things are really improving. Fingers crossed I might be able to start eating a little soon. My throat is very dry now, which is actually an incentive to drink.

Friday, 26 April 2013

Recovery week 2

Another week of recovery done. Things are improving but very slowly. My throat and mouth are slowly drying out, which is as expected but not entirely pleasant.

Still not able to eat anything and whilst I make myself have some water by mouth each day, it is far from easy. However I have to relearn how to swallow so a little each day is better than nothing. I am desperate to eat some food and down a cool glass of water so it can't get better soon enough.

I am still quite tired out, not able to do very much, but feeling better so starting to get bored!

Friday, 19 April 2013

Home again

I got out of hospital yesterday evening, antibiotics in hand. Actually managed to sleep a good few hours of sleep last night, so am hoping it is a sign of things to come.

My mouth and throat are very sore still, possibly more so than ever and the mucus tends to make me nauseous so managing keeping feed down is my main challenge.

Overall though I feel a lot better. Let's hope it continues.

Wednesday, 17 April 2013

Back in hospital :(

Sadly a persistent high temperature led us to A & E last night. I was admitted for a few days of antibiotics. Now sat in my room on the oncology ward, feeling a little better. Nice view!

Friday, 12 April 2013

Done!

Treatment complete at last. Feeling quite rough now but at least it will start to improve soon.

Attached is a picture of my mask, which I will eventually take great pleasure in destroying.

Wednesday, 10 April 2013

Almost there

Two more days to go. Subjective time has slowed down of course, so it seems like a long time but it will soon be over.

This week is proving quite challenging. I can rarely clear the mucus in my throat and if I try too hard I tend to throw up, which isn't very nice. So mostly I try to tolerate it but it makes sleeping very hard. They lent me a nebuliser but I am not convinced it helps much.

To add to the problems my PEG doesn't seem overly happy after it was changed last week. I am seeing the nurse tomorrow in case there is an infection :(

The doctor also warned that next week the cumulative effects of the whole treatment will hit me and I will very likely feel even worse for a week, though things would then start to improve. Fingers crossed it's not too bad. He confirmed that I was handling the treatment well, my blood counts were all good, and I was fine for my final chemo (which people often skip if they are struggling)

Still, it *is* the final week, which is a good thing, and I can't wait until Friday when I have had the last treatment and I can come home and start working on recovery.

Saturday, 6 April 2013

Week 5 done

Week 5 is finally over. Not a good week, but at least it is done with.

I actually managed to get a bit of sleep last night, so I feel marginally better today. Mucus is bad though, so it may be a three boxes of tissues day. The main challenge is getting a litre or more of water drunk - it takes me hours to drink a small glass without coughing it up.  Oh well, nice to have a goal to work towards!

No doubt next week will be a joy.

Time for a naff film...

Monday, 1 April 2013

Week 5 begins

No treatment today due to the bank holiday. However, the past few days have been a challenge. Looks like the utter exhaustion that was promised has arrived, leaving me wiped out after walking from one room to the next.  I am now genuinely a couch potato, and very poor company!

My throat is not too sore today, but it is full of 'stuff' I just can't clear, which is as disgusting as it sounds. During the day it is manageable, but at night it wakes me up once an hour coughing and retching. I can happily say I am now desperate for the next two weeks to pass and for things to start getting better!

Thursday, 28 March 2013

Week 4 done!

So that's week 4 done. We have a long weekend then into week 5.

I am pretty tired now all the time, and seem to feel the cold a lot more than I usually do. Some nights I am awake much of the night coughing to try to clear me throat. I used a whole box of tissue last night! No doubt this isn't helping with the tiredness.

Chemo today did it's usual trick of hydrating me nicely though by now my throat is getting extremely dry and sore (I had thought it couldn't get worse but there you go)

Saturday, 23 March 2013

Half way

Last night's radio marked the half way point of the treatment :)

We had our training on how to use the food pump yesterday and I'm now on continuous feed, which takes about 10 hours, though the pump is portable so it isn't overly inconvenient.  Having more calories is making me feel a whole lot better, as is not trying to force down food through a throat that is just too sore.  I can't begin to imagine how people manage through this without the PEG (much as I hate the thing).

My two day's of anti-sickness (post chemo) is almost over again, which is a relief as I suffer from hiccups as a side effect of the Zofran.  Having hiccups for two days a week seems a cruel and unnecessary additional thing to deal with.

I'm now eager to get another week out of the way.

Wednesday, 20 March 2013

Week 3

We're halfway through week 3 - by the time chemo is over tomorrow we'll be pretty much half way through the treatment.  They did warn that things tended to get worse around now, and I have to say that they really have.  Since the weekend eating has been close to impossible, though strangely it was marginally better this morning so I managed to get a tiny bowl of very wet cereals down.  However, my weigh-in on Monday showed a 6lb loss of weight, so I'm having to 'bolus feed' now, which is syringe feeding through the PEG.  It's actually not too stressful, though it is slow and messy and tends to leave me bloated and over full.  Training on use of the food pump is scheduled for Friday.

A bigger problem is the cough I get on and off all night, which for the past two nights has stopped me sleeping much.  Not sure if there's much that can be done, but will ask the doctors again today.  I am very tired, though, so hope it is just a phase and that it passes.






Friday, 15 March 2013

Chemo 2/6, end of week 2

By dinner time today I'll be done with week 2, one third of the way through...

Had a few days of nausea this week, only mild but most of the time and it put me off my food, so I had to force myself to eat.  Eating actually made it better, so it was worth it.

Chemo day was relatively pleasant - I think the constant hydration and the anti-sickness drugs made me feel better than I had all week.  I got some tablets to calm my stomach, and they told me to take the mild anti-sickness meds all week if I felt the need (they could let me take the stronger ones too, but the side-effects aren't attractive so I am declining for now).  I felt well enough to have a mild curry last night, and found it moderately enjoyable (though it did taste a bit odd).

I managed to get a bit of sleep, though I was awake at 5am.  I managed to stay in bed dozing and then got up at 6am with Daniel.  Sat working, webbing and listening to the radio since then, as I don't really fancy lounging on the sofa.  Sadly today my throat is a little sore for the first time so I guess that's started.  Two weeks without any real pain is a good run, and it isn't so bad that eating it too hard yet.  Will see what the next few days hold.

I've gotten to know a few of the other guys (it seems to be mostly men) who are on similar treatment programs at the hospital.  One of them is a week ahead of me, so is a handy guide of what might be coming - he is using the PEG to feed already, and finding it OK.  I'll see how quickly eating gets unbearable, but will try to hold out for another week or two (though I'm realistic and know I might have to revise that plan).

The challenge that is lunch next, for which I might just take the easy option of scrambled eggs :)

Saturday, 9 March 2013

One week done

Only 5 more to go. It seems like a long time but I know it will pass more quickly than expected.

The slight nausea is slowly subsiding though it is taking an effort to be interested in food. I can see why, once the sense of taste starts to go, people just don't want to eat. Mine is still mostly intact and my appetite is waning.

Whilst I am pretty tired and my mouth is drier than usual I don't feel too bad. It will get worse, I know!

So a couple of days off and then back to hospital on Monday morning to review my progress (and have another dose of radio of course).

I was very touched to receive an envelope with what looks like one origami paper crane per Amadeus employee, which I am reliably informed is a variation on a Japanese custom where 1000 paper cranes are given to someone who is ill or otherwise in difficulty. Daniel was very impressed too :-)

Thursday, 7 March 2013

Chemotherapy 1/6

I had the first chemo treatment today and the 4th radio. I have season 1 of Falling Skies on my Nexus, so I spent most of the day watching that. On the whole an ok day. I was then put to the top of the queue for radio so we were home at a sensible time before Daniel went to bed.

I have a huge stack of anti-sickness meds to take tonight until Sunday, but they don't anticipate any problems.

We also had to get a proper thermometer as any infection (and associated rise in temperature) has to be spotted, and generally leads to immediate admission to hospital for IV antibiotics. Fingers crossed we don't need it.

Feeling OK, hopefully won't feel too sick, one more radio this week and week 1 is over :)

Monday, 4 March 2013

Radiotherapy 1/30

One down, 29 to go. Staying still with my head fastened down in a mask for 20 minutes is manageable now but I can't imagine what it will be like when things get sore. However, it is only brief and will no doubt be something I get used to.


Wednesday, 27 February 2013

Home

We eventually got away from the hospital, loaded up with a food pump and various other bits and pieces. Tube site is pretty sore but seems to be improving by the hour.
A few days of recovery should do it!

Amusingly I just re-read my posts from the hospital, and realized that I repeated myself.  They said the sedation would cause some short term memory loss, which was supposed to make me forget the operation.  Instead it seems to have made me forget the time shortly afterwards.  Oh well.

Tuesday, 26 February 2013

Proud owner of a PEG

After some waiting I had the PEG insertion this afternoon. I have to say I was a lot more aware of what was going on than I would have liked, but it was brief and is now over.

Moving around is very painful, especially getting up off the bed. I have managed to drink water and eat a baked potato, and had some water through it so all seems well.

Once it has healed it doesn't seem like it will be too obtrusive. I still expect to celebrate the day it finally comes out though!

Sadly the gentleman in the corner seems to be gearing up for another night of shouting at the nurses so it may not be a very restful one again.


Pain in the peggin tummy

Peg op done after a lot of waiting. Was very odd. Sedated but felt every incision and stitch, and do remember contrary to what they said. Quite sore now and not wanting to move. But it will improve quickly I am told.

Monday, 25 February 2013

Pegtastic

2.5 hours waiting for a bed but at least I have one. Otherwise apparently I would be in the onsite hostel for the night.

Pay TV to keep me company, not so bad. Shame about the cucumber sandwich for dinner, I may have to head to the food court shortly.

PEG countdown - 1 day to go

Spend a nervous (but only slightly) morning working from home until I go in to hospital for the PEG insertion operation, which is not actually going to happen until tomorrow.  Everyone tells me it's pretty minor, but it is still pretty unappealing, and will no doubt be painful whilst it heals.  Need to see what food I can find to take in so I'm not reliant on hospital fare!

This time tomorrow I may be done and back on the ward.  Fingers crossed it's not a whole day waiting without food...

Monday, 18 February 2013

Ukulele


Phantom of the Opera mask, scan & schedule

A few days later we got my next appointment, which was for last Wednesday (13th Feb).  No indication of what for, so we went along to find out.  I had called and discussed the treatment with the oncology registrar in the meantime, as I was unclear on why the radiotherapy was over such a large area to treat the lymph node - I now understood that they wanted to cover a larger area to make sure they got any cancer cells that were still hanging around in the tissue around the tonsil and in the area between the tonsil and the lymph node.  I was also clear that the chemo was once a week, but the radio was every day (which we had not understood on the previous visit, somehow).

A few days prior to the appointment, we got a letter about the PEG insertion, scheduled for the 26th (hospital stay from the 25th - 27th).

On arrival at the oncology department, we were somewhat surprised to have my name read out before our appointment time!  I went to be weighed (which showed that all our attempts to fatten me up had come to naught so far), then had an unpleasant 'cannot find the vein' cannula experience (it was a bit cold, so my veins were hiding, so not their fault).  I then lay on a bench in front of the CT scanner, and they laid the warm, wet mesh of the immobilization mask on my face and proceeded to mold it.  It was quite pleasant, like a nice facial massage, though as it dried it did tighten up - not much chance of me moving in that, that's for sure.  They then injected me with some 'contrast' and I had my CT scan, which is done in the mask so they have a scan of me in the fixed position which will be used for the radiotherapy.

We were given my treatment schedule, which starts on Monday 4th April (the week after the PEG surgery) and we went home.

As of today, I have a week with no hospital visits, back at work.

And I have a Ukuleke I've bought so I can try to learn to play it.  Plus a growing pile of DVD box sets and films.  I'm almost looking forward to it (er, not really, though I do kinda want to get on with it now).

Follow on treatment - the plan!

Having been reassured by everyone that I might just need 'a bit of radiotherapy' we went along to see the ENT consultant on 6th Feb.  After checking my throat was healing well (which it was) the registrar brought in the oncology consultant.  After two room changes (not enough rooms, apparently) we ended up in a treatment room, where the oncology consultant proceeded to scare us to death with stories of side effects, tooth extraction, complications, etc.  He was very nice, very supporting and brutally 'worst case' honest about what would happen next.  For us, the shock (and I actually went into shock a little and had to lay down) was the contrast between the casual assessment given previously and the dire predictions we were now hearing.  No change to the prognosis, still good, so at least long term I was still likely to be OK, but only after a 6 week combined chemo/radiotherapy course.  I had even been told previously that there would definitely not be any chemo, so all in all a very shocking half an hour for us.  Subsequently we have realized that we were being given the very worst case in every respect, as he ticked off the risks he had to outline to us.

What was a bit upsetting was the need to have a PEG feeding tube installed - this is a small tube inserted through the abdomen directly into the stomach, which allows direct feeding of people who are unable to eat or drink.  Addenbrookes install these for anyone undergoing radiotherapy on the throat, as hardly anyone manages to eat properly throughout the treatment, and maintaining my weight will be very important not just from a general health point of view, but also to ensure that the treatment remains correctly calibrated.  Whilst I know it is the right thing to do, and rationally I know I'll be fine once it's in and I get used to it, the thought of it makes me pretty apprehensive.

Once we'd calmed down we were sent to the dental department to have my teeth assessed.  Apparently any dodgy teeth have to be removed due to the risk of dental complications (which can then cause the jaw bone to die and shed through the skin!).  Sadly we just missed the x-ray department before they went to lunch, so we had to wait an hour for them to get back, then quite a lot longer for our notes to arrive and our slot to come along.  The first step was the x-ray, for which I stood with my head on a little ledge whilst a small x-ray machine rotated around me.  I then went to wait some more, and was eventually called through to talk to a very nice consultant who told me I had excellent dentition and hence had no work to be done.  He prescribed me with a lifetime supply of extra-strong toothpaste and told me to use it in perpetuity.  What a relief, one fewer thing to deal with :)

We went home, and awaited the next appointment.  We had been told I would have an immobility mask made, a CT scan done and the treatment schedule provided over the coming few weeks, along with the dreaded PEG insertion, after which treatment would start and run for 6 weeks, after which I would take anything from a few weeks to a few months to recover somewhat.

So home we went, emotionally drained and somewhat apprehensive, but still happy that the prognosis remained good so it would all be worth it.


Initial treatment

On the 23rd Jan we had an ENT appointment with the consultant to discuss the next steps.  Addenbrookes' ENT department is very good, but always seems to be running late, and this time we had a 90 minute wait in a waiting room so full there was barely anywhere to sit.  Sigh.

The consultant confirmed that the PET scan had found some 'activity' in the left tonsil, which was where they had thought it might be based on the visual examination previously - no other areas showed signs of anything, which was something of a relief.  The first step was to get the tonsils  removed and checked out, and to do a panendoscopy to check there were no other signs in the throat of any problems.  Eager to get this done, the consultant got us scheduled for the following day, much to our surprise.  Hence, we spent the rest of the day in hospital doing the pre-surgery work such as blood tests.  Very tiresome, but as the prognosis was still good, we were remaining positive.

The next day I waited much of the day, talking to the other patients, and watching them leave for surgery, then return.  I finally went in to surgery, and awoke feeling pretty good in recovery (as is often the case, with the stuff they pump into you during operations).  Once I was breathing well enough and a little more awake, I was returned to the ward.  I recovered enough to force down some sandwiches and biscuits, though my throat was very sore.

I moved to an overnight ward, which was lovely and quiet (only one other person in my bay of 6 beds) and had an OK night, though I did have to keep up the painkiller dosage.

I went home the next day, painkillers in hand, and spend the next week and a bit in the most painful discomfort I've so far experienced.  They told me the recovery for an adult tonsillectomy was one of the most painful I would ever go through, and they were not wrong.  On the plus side, painkillers and determined eating of rough bulky (but well chewed!) food, which the hospital had suggested, worked well and I was 80% recovered a week and a half later.

Next we had to wait another week or so to return to the hospital to discuss the results of the tests on my tonsils and the specifics of the follow on treatment...

Diagnosis

I try to be fit and healthy.  I used to go to the gym most days, and more recently have switched to running a few times a week.  I'm not a smoker, nor do I drink too much.

Just before Christmas 2012 I went to the doctors about stomach pains, which both he and I think are IBS.  I also mentioned as an aside that I had recently noticed a node in my neck that was swollen, and had been for a good few weeks.  The doctor was most concerned about the swollen lymph node, so he sent me to the ENT clinic at Addenbrookes in Cambridge, who examined me and then scheduled me for a biopsy.

The results didn't come back until the New Year, but it turned out there were squamous cells in the lymph node, which they told me would have come from somewhere in the mouth or throat. An exam let to a CT scan and a PET scan, which are similar experiences and not particularly stressful. The scans came back indicating there was probably something in the left tonsil, but nothing big enough to be picked up anywhere else.

All very upsetting of course but the consultant was confident that with surgery and treatment I should be fine.

So, on to treatment...